Aniridia Foundation International is pleased to announce their support and collaboration with Aniridia Norway for the 2012 Aniridia conference in Oslo, Norway. We were very honored to have our international colleagues and friends at our July 2011 "Make a Miracle" medical and scientific conference. We hope that you will be able to attend the 2012 international aniridia conference for more great information being shared by our community. In 2010, I was an invited guest speaker for the last medical and scientific conference in Oslo and it was truly an amazing experience! Great exchange of information between colleagues, beautiful country and warm, welcoming hosts. I encourage all of you to try and make it to Oslo June 8-10th. I have again been invited to speak...so hope to see you there! For more information please go to www.aniridiaconference.org

For those that can not make the trip, the Aniridia Foundation International 2013 "Make a Miracle" conference will take place in Charlottesville, Virginia July 17th - 21st, 2013. Put this on your calendar, get your vacation time request in and make plans to attend with the whole family. Events for kids, teens and college age in addition to the medical and scientific presentations. Committees are being formed and events planned. If you are interested in helping and have the time to dedicate, please contact our office at 434-243-3357 or email info@aniridia.net with the subject line of Conference Volunteer. Please list your interests, skills and hours per month you are able to dedicate to volunteering.

United and Working Together....We CAN Make a Miracle!

We've Moved!

Aniridia Foundation International has a new office! AFI has had a wonderful opportunity given to them and has been invited to have an office at the University of Virginia School of Medicine in the Department of Ophthalmology. CLICK HERE to see our new office address.

The book Aniridia and WAGR Syndrome: A Guide for Patients and Families by Jill A. Nerby and Jessica Otis has become a popular book in the low vision community, as well as, the medical and research community. The excellent review given by the medical journal has given suggestion to being a good resource for patients, families and also for medical and ophthalmology students. To read the review click here.

Books will be available for sale at the AFI "Make a Miracle" conference for $25. Save on shipping and get yours there. They make great gifts for family, your child’s teachers, physicians, and friends or donate it to your local library to help spread awareness about aniridia syndrome.

This is the first book done by two people born with sporadic aniridia. They also have the added experience of being moms to children with familial (inherited) aniridia. This inspiring book has something for everyone and makes a great gift for teachers, loved ones, and friends.

There are medical chapters by several renowned doctors, a chapter just for parents/family members, one for teachers, and two chapters of personal stories from many AFI members, plus more.

All books will come with a CD so for those who use screen readers or zoom text programs it will make reading it easier.
Read a review of the book.

“The bracelet was invaluable in allowing a correct diagnosis to be made quickly by the EMT’s as the bracelet stated that my child’s dilated pupils were due to Aniridia. A code with an online access provided the emergency room doctors with past medical history and a short synopsis of aniridia syndrome which assisted with her care.” E.K.B.

American Medical ID SUPPORTS Aniridia Foundation International by donating 20% of each order back to help those born with low vision and blindness (when ordering here or using our code over the phone or order form)

“My father takes the blood thinner Coumadin, my elderly grandfather has a pacemaker, my brother-in-law has diabetes and my great uncle takes multiple types of medications and sometimes is very forgetful….for FATHERS DAY…I am getting them a Medical ID. There are many people with conditions which should have a Medical ID bracelet, wrist band or necklace…but only one reason to have it…to save their life in an emergency.” R.G.

Show your concern for those you love….while showing your support for AFI

With summer vacations in full swing, those people who travel away from home to "get away from it all" also get away from their family doctors. If you are out of town when you experience a medical problem, those treating you won't be familiar with your conditions. Having a Medical ID is a handy way to insure that your specific needs are addressed. The included optional secure online medical record (for EMT or physician use) allows even more personalized treatment. This can save lives in emergencies. There are so many people who have need for these bracelets which provide the security of knowing that in event of an emergency, they will be treated correctly and responsibly. These Medical ID’s come in bracelets, jewelry, watches, sports wristbands, necklaces and even ones for the durability of kids.