For some, your journey has just started, and others have a whole life full of experiences. Either way, you will be able to learn and share many things through Aniridia Foundation International.
For those that are looking to support a family member, friend, or if you are a philanthropist seeking a worthwhile cause to help children, the visually disabled or to support vision research, we welcome you to our website. Please contact us with any questions you may have.
In the past, there was little information and even less research about aniridia syndrome, mostly because ophthalmologists did not see many cases and are sometimes unfamiliar with its complexities. I felt the key to understanding this genetic congenital eye and medical disorder called aniridia syndrome, with the help of our Medical and Scientific Board physicians and researchers, was to unite those affected by this syndrome, their families, caring physicians, and determined researchers.
Since 2001, when we started as USA Aniridia Network and now doing business as (dba) Aniridia Foundation International (AFI), our team effort has made a real difference in the lives of many. We have made a difference by supporting families in the low vision community, educating and creating awareness about aniridia syndrome, and spearheading important research. But we still have a ways to go.
The core of AFI is centered on research-based projects such as our largest and most important project, the International Medical Registry and Gene Bank. In addition to helping those with aniridia syndrome, this program will advance research for various conditions which make up aniridia syndrome commonly found in the general population such as: glaucoma, retinal issues, corneal disease, low vision, diabetes, autism spectrum disorders, metabolic disorders and obesity. Having collaborations world-wide, the tools (our collection of data), and our AFI Medical and Scientific advisors assisting us we are able to make huge strides with your help. By working together we can accomplish many things!
You are not alone and we are here to help! We welcome you to join us and see how our "team" efforts can assist the low vision community, make advancements in research, improve patient care and one day, a cure.
Whether it is through your generous donations, your dedicated volunteering or participation in the research data collection, with your support you can Help Us Make that Miracle!
Jill Nerby, Director & Founder, Aniridia Foundation International
All information or documents bearing the name Aniridia Foundation International are the sole property of Aniridia Foundation International (AFI) If you wish to share our information on websites and/or social media it must be approved by AFI. We will not be responsible for any information shared elsewhere that may have been altered or may not be current information. Please contact us for approval. Thank you.
AFI Medical Registry helps the Ataluren Aniridia Phase 2 proof-of concept study by PTC Therapeutics
AFI is thrilled to help spread this wonderful news about this exciting research. Those with aniridia who have documented genetic results are encouraged to send us a copy to be put in the Aniridia Medical Registry.
Charlottesville Lions Club
14th Annual Golf Tournament
Saturday, September 26, 2015
Join us on the fairway or sponsor a sign on the course to honor a family member with aniridia. Proceeds will be donated to AFI and the Lions Club.