|
|
Join our family
We provide support, social and educational services
through many benefits and programs.
Benefits:
|
Free quarterly newsletter with important information on aniridia,
treatments, events, research, conference details and deadlines and
regular columns like Meet Our Members, Parents Pride, Ask the Doctor.
|
|
Online private area to share information, read the latest
medical articles affecting those with aniridia, meet others, develop
friendships and support networks.
|
|
Discounted rates for medical conferences that put you there with the
best physicians and researchers in aniridia and socials where you can
meet others.
|
|
Contacts for the doctors with aniridia experience.
|
|
Helpful suggestions from our Medical Advisory Board, Scientific Board
or our Low Vision Teachers / Specialists
|
|
Getting involved with others willing to "make a difference"
in the lives of those affected through volunteering, fundraisers, and
our committees.
|
|
Speaking with others who have experienced what you are going through
and helping you with it.
|
We believe coming together as a group will not only help us deal
with sometimes difficult situations, but provide useful information to
those who have dealt with and conquered those problems. It will also show
the research community that many low vision and blind people with
aniridia exist and need treatments, and research. After all, there is
strength in numbers!
JOIN TODAY
Click
here
to fill out the electronic form or
Download the form in Adobe Acrobat document (pdf) format.
Download the Spanish language form in Adobe Acrobat document (pdf) format.
We understand not all people have time to volunteer. However, with a
couple hours a week, it can really help. If you find that you can not
volunteer your time, there are other ways to help like making a yearly or
monthly donation (by check, credit card or monthly debit by clicking
HERE
) OR providing a personal contact name of your friend, colleague or
family member's business or foundation to contact for support, OR hosting
a fundraising event (dinner party, cocktail, garage sale, ideas are
endless)
WELCOME TO ANIRIDIA FOUNDATION INTERNATIONAL
Once your application is processed, you will receive a welcome packet
with information, our brochures, your User ID and password for the
online area, and the International Aniridia Medical Registry
questionnaire. This registry questionnaire is very important to gaining
data so that we can have researchers have something to study. Only this
way we will move towards a cure. Please participate in this Phase I
project. For more information, see your newsletter or the website
(www.aniridia.net).
|
|